Article information
Abstract
Background
This study evaluated the effects of a patient journal club educational program on quality of life, cyberchondria, and key pain-related variables (intensity, catastrophizing, acceptance, self-efficacy) in women with fibromyalgia.
MethodsA pre–post study design was employed. Twenty women with fibromyalgia (mean age 50.8±7.5 years) participated in a three-week patient journal club educational program. The journal club included collaborative planning, material preparation, and individual reading of adapted scientific articles. The sessions were moderated in person by a speech-language pathologist with six years of university teaching experience but no prior specialized training in chronic pain, ensuring a neutral facilitation of the group discussions. Outcome measures assessed were quality of life, pain intensity, pain catastrophizing, pain self-efficacy, pain acceptance and cyberchondria.
ResultsSignificant improvements were observed in quality of life (p=0.001, d=−0.85), pain intensity (p=0.005, d=−0.74), pain catastrophizing (p<0.001, d=−1.11), pain acceptance (p=0.028, d=0.53) and cyberchondria (p=0.003, d=−0.75). Pain self-efficacy showed no statistically significant change (p=0.083, d=0.41).
ConclusionsThese findings suggest that the patient journal club is a promising tool for improving quality of life, and reducing pain intensity, pain catastrophizing and cyberchondria in women with fibromyalgia. Given the study's small sample size and lack of a control group, further research with larger, controlled trials is necessary to validate these results.
Keywords:
Fibromyalgia, Psychoeducation
Pain neuroscience education
Journal club
Health education
Chronic pain
Resumen
Antecedentes
Este estudio evaluó los efectos de un programa educativo de lectura de artículos científicos para pacientes sobre la calidad de vida, la cibercondría y variables clave relacionadas con el dolor (intensidad, catastrofización, aceptación y autoeficacia) en mujeres con fibromialgia.
MétodosSe empleó un diseño de estudio pre-post. Veinte mujeres con fibromialgia (edad media 50,8±7,5 años) participaron en un programa educativo de lectura de artículos científicos para pacientes de tres semanas de duración. El programa incluyó planificación colaborativa, preparación de materiales, lectura individual de artículos adaptados. Las sesiones fueron moderadas por una logopeda con seis años de experiencia docente universitaria, pero sin formación especializada previa en dolor crónico, lo que garantizó una moderación neutral de los debates grupales. Las variables de resultado evaluadas fueron la calidad de vida, la intensidad del dolor, la catastrofización del dolor, la autoeficacia para el manejo del dolor, la aceptación del dolor y la cibercondría.
ResultadosSe observaron mejoras significativas en la calidad de vida (p=0,001, d=−0,85), la intensidad del dolor (p=0,005, d=−0,74), la catastrofización del dolor (p<0,001, d=−1,11), la aceptación del dolor (p=0,028, d=0,53) y la cibercondría (p=0,003, d=−0,75). La autoeficacia para el manejo del dolor no mostró cambios estadísticamente significativos (p=0,083, d=0,41).
ConclusionesEstos hallazgos sugieren que el club de lectura de artículos para pacientes es prometedor como herramienta para mejorar la calidad de vida y reducir la intensidad del dolor, la catastrofización del dolor y la cibercondría en mujeres con fibromialgia. Dado el tamaño reducido de la muestra y la falta de un grupo de control, se requiere investigación adicional con ensayos controlados de mayor tamaño para validar estos resultados.
Palabras clave:
Fibromialgia
Psicoeducación
Educación en neurociencia del dolor
Club de lectura
Educación para la salud
Dolor crónico
Article
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