TY - JOUR T1 - Ranking the importance of their own diseases: A positioning analysis in rheumatic patients and their proxies JO - Reumatología Clínica T2 - AU - Barajas-Ochoa,Aldo AU - Rojero-Gil,Elias Kaleb AU - Bustamante Montes,Lilia Patricia AU - Ramos-Remus,Cesar SN - 1699258X M3 - 10.1016/j.reuma.2021.04.014 DO - 10.1016/j.reuma.2021.04.014 UR - https://www.reumatologiaclinica.org/es-ranking-importance-their-own-diseases-articulo-S1699258X21001558 AB - Introduction/objectiveTo assess the positioning that patients with systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), ankylosing spondylitis (AS) and their proxies give to their diseases. MethodsSubjects completed a self-administered questionnaire to rank 11 diseases from “worst” to “least bad”. Then they defined the “worst” disease and ranked 10 diseases from highest to lowest importance from a list including “my rheumatic disease/my relative's disease”. The lists of the included diseases represented the mindshare from a sample of healthy adults. ResultsThere were 570 respondents (104 SLE, 99 RA, 82 AS, and 285 proxies). Rheumatoid arthritis was considered the third-worst disease (recoded ranking first by 41% of patients and 43% proxies, second by 49% and 44%, and third by 10% and 13%). A disease that kills was the preferred definition for the worst disease. “My disease/my relative's disease” was ranked fourth in importance (first by 41% of patients, second by 38%, and third by 21%). Rankings were not associated with age, schooling, disease duration, or setting. Discussion and conclusionsMost respondents ranked their own disease considerably lower than other non-rheumatic conditions. ER -