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Original Article
DOI: 10.1016/j.reumae.2021.03.002
Available online 8 April 2021
Current state, control, impact and management of rheumatoid arthritis according to patient: AR 2020 national survey
Estado, control, impacto y manejo actual de la artritis reumatoide según los pacientes: encuesta nacional AR 2020
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Laly Alcaidea, Antonio I. Torralbaa, José Eusamio Serreb, Carlos García Cotarelob, Estíbaliz Lozac, Francisca Siverad,
Corresponding author
fransimas@yahoo.es

Corresponding author.
a Coordinadora Nacional de Artritis, Madrid, Spain
b Ekineo Business Intelligence, Barcelona, Spain
c Instituto de Salud Musculoesquelética, Madrid, Spain
d Servicio de Reumatología, Hospital General de Elda, Alicante, Spain
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Tables (6)
Table 1. Baseline characteristics of patients included in the AR 2020 survey.
Table 2. Current treatments administered to patients in AR 2020 survey.
Table 3. Result from the variables included in RAPID3.
Table 4. Impact of RA on difference aspects of the patient’s life.
Table 5. Degree of impact in everyday of the following RA symptoms.
Table 6. Main characteristics of the patients with high levels of activity included in the RA 2020 survey.a.
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Abstract
Objectives

To analyse current status, control and impact of RA on patients’ lives as well as the management of RA symptoms.

Methods

A structured anonymous online questionnaire was designed and sent to patients with RA, aged 18 years or above living in Spain. Participants were invited though different strategies: 1) ConArtritis and related patients associations; 2) Patients participating in the platform www.in-pacient.es; 3) Links from ConArtritis website and open social networks. Sociodemographic and clinical variables, as well as others related to the objectives were collected. A descriptive analysis was performed.

Results

We analysed 882 RA patients, 89% women, with a median age of 52 years, 31.9% disease duration <5 years. They reported a mean pain and patient global disease score (0−10) of 5.1 and 4.9 respectively. The rate of patients with many difficulties or inability to perform daily tasks varied from 6.4% to 49.2%. Based on the activity index 56.8% of patients reported high activity. We found a great or severe impact on the emotional well-being in 31.5% of patients, and of 29.2% in the workplace or academic setting. A total of 87.9% are taking some medication for RA, and 17.3% are little/not satisfied with them. In addition, 67.1% take conventional synthetic disease modifying drugs (DMARDs), and 45.9% biological therapies including biosimilars and small molecules.

Conclusions

The current impact of RA on patients’ daily lives remains very high. A significant number of patients are not taking DMARDs (conventional synthetic and/or biologics) despite high activity.

Keywords:
Rheumatoid arthritis
Quality of life
Pain
Fatigue
Treatment
Survey
Resumen
Objetivos

Analizar el estado, control, impacto y manejo actual de la artritis reumatoide (AR) según los pacientes.

Métodos

Encuesta para la que se envió un cuestionario estructurado, anónimo, en formato electrónico a pacientes adultos con AR residentes en España, a través de 1) ConArtritis o sus asociaciones; 2) Pacientes de la plataforma www.in-pacient.es; 3) Vínculos desde la página web de ConArtritis y redes sociales abiertas. Se recogieron variables sociodemográficas y clínicas, y otras relacionadas con los objetivos propuestos. Se realizó un análisis descriptivo.

Resultados

Analizamos 882 pacientes, 89% mujeres, con una edad mediana de 52 años, 31,9% AR < 5 años de evolución. El dolor y la valoración global de la enfermedad actuales medios (0-10) fueron de 5,1 y 4,9 respectivamente. El porcentaje de pacientes con muchas dificultades o imposibilidad para realizar tareas cotidianas varió del 6,4% al 49,2%. En base al índice de actividad el 56,8% de los pacientes presenta alta actividad. Los pacientes refieren mucho impacto o impacto grave del 31,5% a nivel emocional, o del 29,2% en el ámbito laboral o académico. El 87,9% sigue algún tratamiento para la AR, y el 17,3% está poco/nada satisfecho con el mismo. El 67,1% toma fármacos modificadores de la enfermedad (FAME) sintéticos convencionales, y el 45,9% terapias biológicas incluyendo biosimilares y pequeñas moléculas.

Conclusiones

El impacto actual de la AR en la vida del paciente sigue siendo muy alto. Un porcentaje significativo de pacientes no sigue un tratamiento con FAME (sintéticos convencionales y/o biológicos) a pesar de su actividad.

Palabras clave:
Artritis reumatoide
Calidad de vida
Dolor
Fatiga
Tratamiento
Encuesta

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