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        "resumen" => "<span class="elsevierStyleSectionTitle">Objetivo</span><p class="elsevierStyleSimplePara elsevierViewall">Desarrollar y validar un instrumento espec&#237;fico para valorar la satisfacci&#243;n con el tratamiento en pacientes afectados de artritis reumatoide &#40;AR&#41;&#46;</p> <span class="elsevierStyleSectionTitle">Material y m&#233;todos</span><p class="elsevierStyleSimplePara elsevierViewall">El cuestionario de satisfacci&#243;n se desarroll&#243; utilizando un procedimiento de 3 fases&#58; revisi&#243;n de la literatura m&#233;dica por parte de expertos en desarrollo de medidas centradas en el paciente&#44; evaluaci&#243;n de los &#237;tems seleccionados por parte de 4 expertos en AR en t&#233;rminos de comprensi&#243;n&#44; formato y aplicabilidad y administraci&#243;n mediante entrevista personal a un grupo de 14 pacientes con AR en tratamiento con infliximab&#46; La validaci&#243;n del cuestionario se realiz&#243; en una muestra de 180 pacientes con AR que cumpl&#237;an los criterios del American College of Rheumatology &#40;ACR&#41;&#44; mayores de 18 a&#241;os y que iniciaron tratamiento con infliximab por insuficiente control de su enfermedad&#46; Los cuestionarios fueron administrados en la visita basal &#40;inicio del tratamiento&#41; y a las 2&#44; 6 y 14 semanas&#44; coincidiendo con las infusiones de infliximab&#46; La validez del cuestionario se evalu&#243; en t&#233;rminos de validez de constructo &#40;an&#225;lisis factorial&#41; y validez de contenido&#46; La validez de contenido se evalu&#243; analizando la relaci&#243;n de la satisfacci&#243;n con las distintas variables de efectividad y con el cumplimiento de expectativas creadas antes de iniciar el tratamiento&#46;</p> <span class="elsevierStyleSectionTitle">Resultados</span><p class="elsevierStyleSimplePara elsevierViewall">La validaci&#243;n del cuestionario se realiz&#243; en una muestra de 180 pacientes con una edad media &#40;DE&#41; de 52 &#40;13&#41; a&#241;os&#44; donde el 80&#44;7&#37; eran mujeres y el 72&#44;4&#37; llevaba m&#225;s de 3 a&#241;os de evoluci&#243;n&#46; La puntuaci&#243;n obtenida del cuestionario de satisfacci&#243;n se mostr&#243; relacionada con los distintos aspectos que constituyen los criterios ACR&#44; a excepci&#243;n de la velocidad de sedimentaci&#243;n globular &#40;VSG&#41; y la prote&#237;na C reactiva &#40;PCR&#41;&#44; con el cumplimiento de criterios ACR20&#44; ACR50 y ACR70 y con el cumplimiento de expectativas creadas con el tratamiento &#40;p<span class="elsevierStyleHsp" style=""></span>&#60;<span class="elsevierStyleHsp" style=""></span>0&#44;01&#41;&#46;</p> <span class="elsevierStyleSectionTitle">Discusi&#243;n</span><p class="elsevierStyleSimplePara elsevierViewall">Los resultados obtenidos confirman la validez del cuestionario para evaluar la satisfacci&#243;n de los pacientes con el tratamiento para la AR&#44; tanto en condiciones de pr&#225;ctica cl&#237;nica habitual como en condiciones de investigaci&#243;n&#46;</p>"
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        "resumen" => "<span class="elsevierStyleSectionTitle">Objective</span><p class="elsevierStyleSimplePara elsevierViewall">The aim of this study was to develop and validate a specific tool to assess satisfaction with treatment in patients with rheumatoid arthritis &#40;RA&#41;&#46;</p> <span class="elsevierStyleSectionTitle">Material and methods</span><p class="elsevierStyleSimplePara elsevierViewall">The questionnaire was developed in three stages&#58; firstly&#44; a literature review was performed by experts in developing patient-centered measures&#59; secondly&#44; items selected by 4 experts in RA were assessed for comprehensibility&#44; format and applicability&#44; and thirdly&#44; administration of the questionnaire was evaluated through a personal interview of a group of 14 patients with RA under treatment with infliximab&#46; Validation of the questionnaire was performed in patients with RA who met the ACR criteria&#44; were older than 18 years&#44; and had started treatment with infliximab due to inadequate disease control&#46; Questionnaires were administered at the baseline visit &#40;beginning of treatment&#41; and at 2&#44; 6 and 14 weeks&#44; coinciding with infliximab infusions&#46; The questionnaire validity was evaluated in terms of construct validity &#40;factorial analysis&#41; and content validity&#46; Content validity was assessed by analysing the relationship between satisfaction and different measures used for treatment effectiveness as well as fulfillment of treatment expectations&#46;</p> <span class="elsevierStyleSectionTitle">Results</span><p class="elsevierStyleSimplePara elsevierViewall">Validation of the questionnaire was performed in a sample of 180 patients with a mean &#40;SD&#41; age of 52 &#40;13&#41; years&#46; A total of 80&#46;7&#37; were women&#46; In 72&#46;4&#37; disease duration was longer than 3 years&#46; The scores obtained on the satisfaction questionnaire were related to the aspects defined as ACR criteria &#40;except ESR and CRP&#41;&#44; fulfillment of ACR20&#44; ACR50 and ACR70 response criteria&#44; and fulfillment of treatment expectations &#40;p<span class="elsevierStyleHsp" style=""></span>&#60;<span class="elsevierStyleHsp" style=""></span>0&#44;01&#41;&#46;</p> <span class="elsevierStyleSectionTitle">Discussion</span><p class="elsevierStyleSimplePara elsevierViewall">The results confirm the questionnaire&#8217;s validity in assessing patient satisfaction with RA treatment&#44; both in routine clinical practice and in research conditions&#46;</p>"
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Vol. 2. Núm. 3.
Páginas 137-145 (mayo - junio 2006)
Originales
Acceso a texto completo
Desarrollo y validación de un cuestionario de satisfacción con el tratamiento en pacientes con artritis reumatoide
Development and validation of a satisfaction questionnaire in patients with rheumatoid arthritis
Visitas
11965
Jordi Carbonella,
Autor para correspondencia
JCarbonell@imas.imim.es

Correspondencia: Dr. J. Carbonell. Servei de Reumatologia. Hospital del Mar. Paseo Marítimo, 25-29. 08003 Barcelona. España.
, Xavier Badiab,c, Grupo Expresar *
a Servei de Reumatologia. Hospital del Mar. Barcelona. España
b Departament d’Epidemiologia Clínica i Salut Pública. Hospital de la Santa Creu i Sant Pau. Barcelona. España
c Health Outcomes Research Europe. Barcelona. España
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Estadísticas
Objetivo

Desarrollar y validar un instrumento específico para valorar la satisfacción con el tratamiento en pacientes afectados de artritis reumatoide (AR).

Material y métodos

El cuestionario de satisfacción se desarrolló utilizando un procedimiento de 3 fases: revisión de la literatura médica por parte de expertos en desarrollo de medidas centradas en el paciente, evaluación de los ítems seleccionados por parte de 4 expertos en AR en términos de comprensión, formato y aplicabilidad y administración mediante entrevista personal a un grupo de 14 pacientes con AR en tratamiento con infliximab. La validación del cuestionario se realizó en una muestra de 180 pacientes con AR que cumplían los criterios del American College of Rheumatology (ACR), mayores de 18 años y que iniciaron tratamiento con infliximab por insuficiente control de su enfermedad. Los cuestionarios fueron administrados en la visita basal (inicio del tratamiento) y a las 2, 6 y 14 semanas, coincidiendo con las infusiones de infliximab. La validez del cuestionario se evaluó en términos de validez de constructo (análisis factorial) y validez de contenido. La validez de contenido se evaluó analizando la relación de la satisfacción con las distintas variables de efectividad y con el cumplimiento de expectativas creadas antes de iniciar el tratamiento.

Resultados

La validación del cuestionario se realizó en una muestra de 180 pacientes con una edad media (DE) de 52 (13) años, donde el 80,7% eran mujeres y el 72,4% llevaba más de 3 años de evolución. La puntuación obtenida del cuestionario de satisfacción se mostró relacionada con los distintos aspectos que constituyen los criterios ACR, a excepción de la velocidad de sedimentación globular (VSG) y la proteína C reactiva (PCR), con el cumplimiento de criterios ACR20, ACR50 y ACR70 y con el cumplimiento de expectativas creadas con el tratamiento (p<0,01).

Discusión

Los resultados obtenidos confirman la validez del cuestionario para evaluar la satisfacción de los pacientes con el tratamiento para la AR, tanto en condiciones de práctica clínica habitual como en condiciones de investigación.

Palabras clave:
Artritis reumatoide
Infliximab
Satisfacción
HAQ
Objective

The aim of this study was to develop and validate a specific tool to assess satisfaction with treatment in patients with rheumatoid arthritis (RA).

Material and methods

The questionnaire was developed in three stages: firstly, a literature review was performed by experts in developing patient-centered measures; secondly, items selected by 4 experts in RA were assessed for comprehensibility, format and applicability, and thirdly, administration of the questionnaire was evaluated through a personal interview of a group of 14 patients with RA under treatment with infliximab. Validation of the questionnaire was performed in patients with RA who met the ACR criteria, were older than 18 years, and had started treatment with infliximab due to inadequate disease control. Questionnaires were administered at the baseline visit (beginning of treatment) and at 2, 6 and 14 weeks, coinciding with infliximab infusions. The questionnaire validity was evaluated in terms of construct validity (factorial analysis) and content validity. Content validity was assessed by analysing the relationship between satisfaction and different measures used for treatment effectiveness as well as fulfillment of treatment expectations.

Results

Validation of the questionnaire was performed in a sample of 180 patients with a mean (SD) age of 52 (13) years. A total of 80.7% were women. In 72.4% disease duration was longer than 3 years. The scores obtained on the satisfaction questionnaire were related to the aspects defined as ACR criteria (except ESR and CRP), fulfillment of ACR20, ACR50 and ACR70 response criteria, and fulfillment of treatment expectations (p<0,01).

Discussion

The results confirm the questionnaire’s validity in assessing patient satisfaction with RA treatment, both in routine clinical practice and in research conditions.

Key words:
Rheumatoid Arthritis
Infliximab
Satisfaction
HAQ
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Este estudio ha sido patrocinado por Schering-Plough, S.A.

Al final del artículo se listan los integrantes del Grupo EXPRESAR.

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